#Campaign of #Love, #Hope & #Care #SpinalMuscularAtrophy (SMA) is a #disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one
genetic cause of #death for #infants. #SMA is caused by a mutation in the survival motor neuron gene 1 (SMN1). In a #healthy person, this gene produces a protein that is critical to the function of the nerves that control our muscles. Without it, those nerve cells cannot properly function and eventually #die, leading to debilitating and sometimes fatal muscle weakness. Individuals with SMA have difficulty performing the basic functions of #life, like breathing and swallowing. (Source: curesma.org)
Many of them had already surrendered their lives and few are still in their struggles. Even though the medicine '#Spinraza' has been developed as a cure for this condition, it has to be taken lifelong and the affordability is far ahead from the reach of the commons. But if this #medicine could be #manufactured in India, it'll #affordable serve its #purpose. We request you all to support this #initiative by taking a picture of you with a candle & share it with us. #SMAawarenessmonth #supportforcaretakers #Prajaahita #a11y
